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"MY MIGHTY QUINN"

- A Mother's Conversations with World-Leading Doctors and Paediatric Experts

- A Mother's Conversations with World-Leading
Doctors and Paediatric Experts

PANS PANDAS Awareness Day Podcast

S3 Episode 24: When You Know Something Isn't Right: A Mum-to-Mum PANS/PANDAS Special!

October 09, 2026•3 min read

Welcome to My Mighty Quinn

This special episode is a little different.

Released for PANS/PANDAS Awareness Day, it brings together two mothers who know this journey from the inside.

I’m joined by Lucy from Parenting PANDAS, who turns the tables and asks me the questions as we talk openly, mum to mum, about what it is really like to watch your child change in front of you, to know instinctively that something is wrong, and then find yourself fighting for answers in a system that so often looks at each symptom in isolation.

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Lucy has lived PANS/PANDAS within her own family and created Parenting PANDAS to give families the community, understanding and connection she needed herself.

My own son Quinn’s journey took me in a different but complementary direction, into the science of nervous system health, neurodevelopment, immunity, inflammation and whole child healing, and ultimately to the world-leading doctors and experts who now form The Brain Health Movement.

So this is not simply a conversation about raising awareness of PANS and PANDAS.

It is a deeply personal conversation about what happens next.

Need more support with PANS / PANDAS >> Get clarity, answers and your next steps

What do you do when you finally have a diagnosis but still have no roadmap?

Where do you start when one practitioner is talking about infection, another the gut, another primitive reflexes, another the nervous system, and you are left trying to coordinate it all while your child is struggling and you are running on empty?

Together, Lucy and I explore why healing has a sequence, why the nervous system matters so much, why seemingly disconnected symptoms may be telling us something about the same child, and why supporting the parent and wider family cannot be separated from supporting the child.

We also talk candidly about the exhaustion, fear, gaslighting and trauma so many parents experience, and the enormous power that comes when we begin to understand what may be happening biologically and become informed advocates for our children.

Key takeaways

  • The early signs of Quinn’s PANS journey and the dramatic changes that followed

  • Why a PANS/PANDAS diagnosis may answer one question but immediately create another: what do we actually do now?

  • Why symptoms across the brain, gut, immune system, behaviour, sleep and development should not always be viewed in isolation

  • Why calming and supporting the nervous system can be such an important early part of the journey

  • The role of stress, infection, environment, mould and cumulative biological load

  • Why primitive reflex work and other therapies may sometimes make a child worse when introduced at the wrong time

  • Why development has a sequence, and why healing does too

  • The importance of movement, sleep, natural light, nutrition and everyday environmental inputs

  • Why the parent’s nervous system matters, and why healing often needs to become a whole family journey

  • How parents can move from overwhelm and endless rabbit holes towards education, clarity and a more manageable roadmap

  • Why understanding the biology behind your child’s symptoms can transform the way you advocate at school and within the medical system

  • And most importantly, why there is hope

Today, Quinn is thriving.

And perhaps that is the most important message in this episode.

When you are in the darkest part of this journey, it can feel impossible to imagine life beyond it. But a diagnosis does not have to be the end of the story.

It can be the beginning of understanding.

You do not need another 15 Google tabs.

You need clarity. You need the right sequence. You need support.

And you need to know that there can be a way forward.

ADDITIONAL LINKS:

PANSPANDASautoimmunechildhoodbrain inflammationmental healthsudden behaviour changeparental advocacypaediatricsimmune systemmouldinfectionsparentinghealingQuinnpodcastneuroimmuneresiliencefamily supportmum to mumOCDanxietyTicsoverwhelmfood restriction
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The Brain Health Movement

The Brain Health Movement empowers parents and carers of children with neurological challenges. Children see life-changing transformations using this drug-free, science-backed, movement-based programme. Delivered through accessible, highly effective online courses and kind community support.

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Need More Support?

If you're feeling overwhelmed and just need to be heard and supported to work out the best next step, then book a 1:1 Parent Parent Clarity Session with Lucia.

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